I have been happily married to my wife for nearly 4 years
with 14 years together under our belt. I wouldn’t say it was perfect but for us
it is… the sun has not always shone on our life but we have been cosy under our
umbrella while the rain has fallen around us.
I do however have another marriage, one that I didn’t enter
into in the same way as my ‘conventional’ marriage. I didn’t choose it. I didn’t want it. At
times I felt violated by it. Now… well now I live with it.
We make it work, most of the time it’s harmonious. Whatever happens
we are in it in sickness and in health til death do us part!
My other partners name? Cluster Headaches
Like most relationships it took time to perfect the dance we
do as a couple now. Once I had accepted it was here to stay, which took time
and counselling, my counsellor introduced the idea of a relationship with the
illness. At first the idea appalled me. Like I said this ‘thing’ had come into
my life uninvited and had ripped my life apart from the inside. But it was
staying, there seemed very little anyone could do to make it go away so I
embraced the idea.
Now we both have our own commitments to the relationship.
My vows include; remaining hydrated, taking all my
medication, resting when I need to, eating when I need to, and making sure I always
have a supply of oxygen, not over doing it and lots more…
Cluster headaches commit to being predictable, sticking to
its ‘normal’ attack times during the day, it agrees to respond to oxygen and
leave me alone the rest of the time.
Most of the time we do this dance well, then something will
happen. I will overdo it, not drink enough, or miss a dose of meds. Then
cluster headaches will repay me by acting up, attacking during the day, knocking
me out for hours. I respond appropriately by not doing that again for a while… I
become super-efficient and compliant. And our relationship is harmonious once
more.
Then there are the times that I’ve got plans and for no
reason cluster headaches sets out to ruin it. I then rebel as an act of
defiance (yes you have guessed what comes next). I rebel by not taking my meds
properly, not taking care of myself (yes I know… I’m apparently an intelligent woman;
surely I know where this is going!) So I get sicker and go back to being super-efficient
and compliant. Once again harmony is restored.
So it’s not a conventional relationship, it’s probably not
the healthiest of relationships, But I have made a lifelong commitment to treat
Cluster headaches with as much respect as I can muster and I genuinely believe
that for the most part my cluster headaches are trying to keep up their end of
the deal too.
I get angry, wow do I get angry. I hate the attacks, the
pain, but that’s only a part of the condition like the bad habits of a person
you live with. This condition is my lifelong companion, we’re not perfect but
we make it work. It may have hurt me, but it’s also made me the person I am
today, strong and determined to make a difference… see it’s not all bad.
From one clusterhead to another, thanks for sharing your journey.
ReplyDeleteyou are more than welcome... its cathartic for me but I hope it helps raise awareness and make people that are suffering know they are not alone.
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