A chance for me to share my experience of cluster headaches with those who know nothing about it to help them understand and help me feel understood. I can also highlight issues related to cluster headaches that suffers, supporters and others alike will understand and feel able to comment on.
Saturday, 24 December 2016
An open letter to the ones I love
I have had so many compliments about my strength in the face of my illnesses recently. People have even gone as far as to say that I am the strongest person they know. These are people I count as family, linked to me by both blood and friendship. You, lovely people, but it surprises me and it humbles me... because is only partly true.
I have a confession, I'm not strong, in fact I am a thief. It's not my strength that you see ... it is the strength that I steal from other people.
Every time you send me a message, pick up the phone to give me a ring, send me a letter, pop in to see me, meet me for a cuppa... anytime you reach out to me in anyway I steal a little more strength, I steal it from you.
So when you look at how many obstacles I face and how many challenges I rise to just imagine how grateful I am for all the strength I steal from the people that love me all year round.
It's not easy to love somebody who is living with long-term illness and constant pain. I am moody, I snap at you, I cancel plans and I go off the radar for weeks at a time. I've lost people over the years because it didn't fit with their life.
The fact that there are still enough people around me to supply me with the amount of strength I need is testament to you not me. You stuck with me through thick and thin and have ridden the highs and lows with me. Thank you.
I am forever grateful; You are my tribe and I love you so much.
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